Opportunities for Consumer Engagement

Opportunities for consumer involvement in research implementation (e.g. guidelines panels, surveys, conferences, workshops, and more).

Partnership

In keeping with its role as a consumer-scientist partnership, CUE maintains a clearinghouse function, which seeks to place consumers in contact with healthcare professional organizations so their voices might be incorporated into important healthcare decisions. Consumer representatives often play an important role in research implementation processes such as clinical guidelines panels, grant-writing, peer review, and conference workshops.

The Clearinghouse is a way for organizations to request consumer representatives and for consumers to respond directly to those requests. Since 2007, CUE has fostered over 75 partnerships between consumers and policymaking organizations, including 12 in 2014 alone.

This online tool is meant to streamline the process of matching consumer representatives with organizations.

Open calls for Consumer Engagement
For CUE members wishing to respond to requests for consumer involvement in research implementation

If interested in any of the below opportunities, please contact Genie Han, CUE Coordinator, at ghan14@jhu.edu, or fill out the consumer application form.

Date Requesting Organization Description of Opportunity 

Deadlines and Expectations

Consumer Application form
March 7, 2019 American Society of Plastic Surgeons Seeking individuals who have experienced panniculectomy/abdominoplasty to serve on a clinical practice guideline workgroup. The panel will take approximately 12 to 18 months, including in-person meetings. https://goo.gl/X97Nad
March 22, 2019 ECRI Institute Seeking consumer representatives to comment on 2- to 5-page reports about developing healthcare interventions. They are seeking advocates in the following fields: Alzheimer’s disease and other dementias, cancer, cardiovascular disease, mental and behavioral health conditions, and rare diseases. The comment form is online and has 6 rating-based questions. Turnaround time for comments is 5 business days. https://goo.gl/X97Nad
March 25, 2019 OHSU Center for Evidence-based Policy Seeking a consumer representative to serve on a advisory committee to help design, promote, and disseminate an opioid resource library for policymakers, clinicians, consumers, caregivers, and more. The committee will have two in-person meetings per year. https://goo.gl/X97Nad

 

Updated as of 3/26/2019

 

 

Seeking Consumer Involvement
For organizations seeking consumer involvement in surveys, CPGs, or conferences

Submit a Request for Consumers

Contact CUE to submit a request. Send completed application forms to Genie Han, MSc, CUE Coordinator at ghan14@jhu.edu. Your request will be added to the list of open requests.

 

To all participants:
Please expect to be asked for feedback at the terminus of your partnership. Getting information about the quality of the partnerships we enable is essential for CUE to report to funders and to improve performance moving forward. Thank you!

Feedback from past partners:
When asked to describe their CUE-educated patient/consumer representative, two respondents used the words “diligent” and “resourceful” to describe two different patient/consumers. All respondents said they would want to partner with CUE again for future research implementation activities, as appropriate.