Opportunities for Consumer Engagement

Opportunities for consumer involvement in research implementation (e.g. guidelines panels, surveys, conferences, workshops, and more).

Partnership

In keeping with its role as a consumer-scientist partnership, CUE maintains a clearinghouse function, which seeks to place consumers in contact with healthcare professional organizations so their voices might be incorporated into important healthcare decisions. Consumer representatives often play an important role in research implementation processes such as clinical guidelines panels, grant-writing, peer review, and conference workshops.

The Clearinghouse is a way for organizations to request consumer representatives and for consumers to respond directly to those requests. Since 2007, CUE has fostered over 75 partnerships between consumers and policymaking organizations, including 12 in 2014 alone.

This online tool is meant to streamline the process of matching consumer representatives with organizations.

Open calls for Consumer Engagement
For CUE members wishing to respond to requests for consumer involvement in research implementation

If interested in any of the below opportunities, please contact Kolade Fapohunda, CUE Clearinghouse Coordinator, at kfapohu1@jhu.edu or Genie Han, CUE Coordinator, at ghan14@jhu.edu.

9/26/2018 Academy of Nutrition and Dietetics Seeking patients for Nutrigenomics Systematic Review. 

Deadline for applications: 01/01/2019

 

Participants are expected to participate  by contributing to ongoing discusions, written materials and phone calls

Time commitment: Approxiamtely 2 hours of service per month

Application form for interested patients/consumers
11/2/2018 Academy of Nutrition and Dietetics Seeking patients for Systematic Reviews and Guideline for Nutrition Recommendations for Individuals with Celiac Disease

Participants are expected to participate  by contributing to ongoing discusions, written materials and phone calls

Time commitment: Approxiamtely 2 hours of service per month

Deadline for nomination: November 9

Application form for interested patients/consumers
11/5/2018 American Association of otolaryngology head and neck Surgery Seeking two patients for Clinical Practice Guideline: Epistaxis (Nosebleed) 

Time Commitment: reviewers will then be given 4 weeks to review and provide comments.

Deadline for nomination: November 30

Application form for interested patients/consumers

Updated as of 11/6/2018

Please send all applications for involvement to Genie Han, CUE Coordinator: ghan14@jhu.edu

 

Seeking Consumer Involvement
For organizations seeking consumer involvement in surveys, CPGs, or conferences

Submit a Request for Consumers

Contact CUE to submit a request. Send completed application forms to Genie Han, MSc, CUE Coordinator at ghan14@jhu.edu. Your request will be added to the list of open requests.

 

To all participants:
Please expect to be asked for feedback at the terminus of your partnership. Getting information about the quality of the partnerships we enable is essential for CUE to report to funders and to improve performance moving forward. Thank you!

Feedback from past partners:
When asked to describe their CUE-educated patient/consumer representative, two respondents used the words “diligent” and “resourceful” to describe two different patient/consumers. All respondents said they would want to partner with CUE again for future research implementation activities, as appropriate.