2016 G-I-N Philadelphia Pre-conference Workshop: Close Encounters of a Third Kind?
Involving Patients and Consumers in Guideline Development: A Joint Workshop of G-I-N PUBLIC and CUE – Consumers United for Evidence Based Health Care
Brenda Shelton-Dunston of the Philadelphia Black Women's Health Alliance (left) and Ann Fonfa of the Annie Appleseed Project (right) describe their experiences serving on advisory panels at the G-I-N PUBLIC/CUE workshop
Location: University of Pennsylvania Campus
Involving patients and/or consumers is considered a quality criterion for guideline development: the Institute of Medicine or G-I-N standards as well as AGREE II ask for patient involvement. But for many guideline developers, successful involvement still remains a challenge: Where to find patients and/or consumers? How to train them? How to deal with conflicts of interest? This workshop aims at providing practical support and sharing international experience to facilitate successful patient or consumer involvement for guideline developers.
In the following video, Ann Fonfa, CUE Representative for the Annie Appleseed Project, describes her experiences serving on an advisory panel: