CUE Member Organizations (as of 01-11-2018)
Steering Committee members
Maine Coalition to Fight Prostate Cancer
Representative: Terry Kungel (chair)
Raise awareness of prostate cancer and the importance of early detection by working with many groups in Maine and around the country to achieve the common goal of eradicating prostate cancer.
Annie Appleseed Project
Representative: Ann Fonfa
Promote evidence-based complementary and alternative cancer therapies.
Association of Cancer Patient Educators
Representative: Sandy Finestone
To provide education and support to cancer patients, survivors, and their loved ones.
Black Women’s Health Alliance
Representative: Brenda Shelton-Dunston
Define, promote and maintain the physical, mental, social, and spiritual well-being of African American women, women of color, and their families.
Representative: Ngina Lythcott
Eliminate health disparities for black women (focus on women’s reproductive health).
Representative: Lorraine Johnson
Educate the public and medical community, disseminate information, and fund research regarding Lyme and other tick-borne diseases.
Mothers Against Medical Error
Representative: Helen Haskell
Promote an ethical, patient-centered healthcare system that is based on sound medical evidence and transparent patient outcomes.
Representative: Astrid Jimenez
Inform, support and empower Latino families whose lives are affected by cancer, and to advocate for and facilitate the timely access to state of the art cancer care, including screening, diagnosis, treatment and high-quality care.
CUE Member Organizations
Black Women's Health Imperative
Representative: Leslie Parks
To improve the health and wellness of Black women and girls - physically, emotionally and financially.
California Breast Cancer Organizations (CABCO)
Representative: Sandy Walsh
California Breast Cancer Organizations is a coalition of nine member organizations, which work together to achieve
CABCO’s mission: the eradication of breast cancer through education and advocacy.
Celiac Disease Foundation
Representative: Marilyn G. Geller, CEO
To improve the quality of life for all people affected with celiac disease and non-celiac wheat sensitivity through important advocacy, education and research initiatives.
Center for Medical Consumers (inactive)
Representative: Maryann Napoli
Broaden public awareness about the safety and quality problems in medical care.
Center for Science in the Public Interest
Representative: David Schardt
Promote nutrition and health, food safety, alcohol policy, and sound science.
Centering Healthcare Institute
Representative: Lisa Summers
Improve maternal child health by transforming care with Centering groups.
Representative: Lisa Geng
Improve the communication skills and education of all children with speech and language delays and disorders.
Childbirth Connection Programs of the Partnership for Women and Families
Representative: Carol Sakala
Improve the quality of maternity care through research, education, advocacy and policy.
Children With Diabetes Foundation
Representative: Ellen Ullman
The mission of the Children With Diabetes Foundation is to fund human clinical trials leading to cure and
prevention of Type 1 diabetes.
Citizens for Patient Safety
Representative: Patty Skolnik
Build bridges between consumers, the medical community and insurance companies to improve healthcare systems
and the quality of care that patients receive.
Connecticut Center for Patient Safety
Representative: Lisa Freeman
To improve the quality of healthcare and to protect the rights of injured patients through education, accountability, and advocacy.
Representative: Doris Peter
Work for a fair, just, and safe marketplace for all consumers and empower consumers to protect themselves (focus on health).
Faces and Voices of Recovery
Representative: Lindsay Lang
Mobilize people in long-term recovery from alcohol and other drug addiction to increase access to research, policy, organizing and technical support.
Advocate for national health reform that would expand coverage to everyone without insurance, provide
stable coverage to those with insurance, and improve quality while decreasing costs for consumers and the health
Hepatitis B Initiative of Washington D.C.
Representative: Jane Pan
To mobilize communities to prevent liver diseases caused by viral hepatitis among Asian Americans and
Pacific Islanders, African immigrants, and other high-risk groups.
Homebirth Summit Consumer Engagement Task Force
Representative: Lynsey Hamilton
Improve maternity care and develop high-quality home birth services by increasing consumer participation in multi-
Representative: Laura Ruth Ward
Promote a natural, healthy and safe approach to pregnancy, childbirth and early parenting.
Representative: Suzanne Robotti, President
To prompt discussion between patients and healthcare providers.
National Alliance for Caregiving
Representative: Gail Hunt
Be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients.
National Breast Cancer Coalition
Representative: Annette Bar-Cohen
Eradicate breast cancer by participating in legislative, scientific and regulatory decisions, promoting positive media coverage and raising public awareness.
National Center for Health Research
Representative: Jack Mitchell
Promote the health and safety of women, children and families by using objective, research-based information to encourage new, more effective programs and policies.
National Center for Transgender Equality
Representative: Harper Jean Tobin
Advance the equality of transgender people through advocacy, collaboration and empowerment (focus on women’s reproductive health).
National Committee to Preserve Social Security and Medicare
Representative: Bill Vaughan
Protect, preserve, promote, and ensure the financial security, health, and the well being of current and future
generations of maturing Americans.
National Consumers League
Representative: Karin Bolte
Promote social and economic justice for consumers and workers in the United States and abroad (focus on health).
National Council on Aging
Representative: Wendy Zenker
Improve the lives of all older adults especially those who are vulnerable and disadvantaged (focus on health).
National Environmental Education Foundation
Representative: Vernessa Perry
Provide knowledge to trusted professionals who, with their credibility, amplify messages to national audiences to solve everyday environmental problems (focus on environmental health).
National LGBT Cancer Network
Representative: Barbara Warren
To improve the lives of LGBT cancer survivors through education, training, and advocacy.
National Mental Health Consumers’ Self-Help Clearinghouse
Representative: Susan Rogers
Promote dignity, respect, and opportunity for those with mental illnesses.
National Vaccine Information Center
Representative: Barbara Loe Fisher
Prevent vaccine injuries and deaths through public education and defend the informed consent ethic.
National Women’s Health Network
Representative: Jennifer Sweeney
Improve the health of all women by developing and promoting a critical analysis of health issues in order to affect policy and support consumer decision-making (focus on women’s reproductive health).
Our Bodies Ourselves
Representative: Julie Childers
Provide clear, truthful information about health, sexuality and reproduction from a feminist and consumer
Ovarian Cancer Alliance of San Diego
Representative: Peg Ford
To effect change in the way medical doctors consider diagnosis and treatment of ovarian cancer by educating the medical community, patient organizations and the community at large to accomplish early diagnosis, improved treatment options, and eradicate ovarian cancer.
Patient Safety America
Representative: John James
Support a national, enforced patient bill of rights and to provide information to patients or potential patients who are concerned about the quality of health care they receive in the United States.
Representative: Lidyrez Mejia
To build and maintain our community, while working with others to solve our problems.
Rhode Island Breast Cancer Coalition
Representative: Marlene McCarthy
Ensure that all women have access to screening and treatment for breast cancer, to increased support for research,
and advocate for legislative initiatives to improve the quality of healthcare for women and their families.
Representative: Jackie Lombardo
Investigate, support research and raise awareness of the risks to infants and children of exposure to mercury from medical products, including thimerosal in vaccines.
Representative: Katherine Leon
To be the leader in advancing the science of SCAD through improved knowledge and cooperation among healthcare professionals, patients, and their families.
Representative: Terrie Cowley
To improve the quality of healthcare and lives of everyone affected by temporomandibular joint and muscle disorders by promoting advocacy and research and providing resources.
Representative: Ilene Sussman
To improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
Washington Advocates for Patient Safety
Representative: Yanling Yu
To advocate for patients' rights and safety.
Young Survival Coalition
Representative: Michelle Esser
Increase the quality and quantity of life for women diagnosed with breast cancer ages 40 and under.