CUE Member Organizations (as of 7-14-2021)
Steering Committee members
Annie Appleseed Project
Representative: Ann Fonfa
Promote evidence-based complementary and alternative cancer therapies.
www.annieappleseedproject.org
Association of Cancer Patient Educators
Representative: Sandy Finestone
To provide education and support to cancer patients, survivors, and their loved ones.
www.hopewellnesscenter.vpweb.com/
Black Women’s Health Alliance
Representative: Brenda Shelton-Dunston (co-chair)
Define, promote and maintain the physical, mental, social, and spiritual well-being of African American women, women of color, and their families.
www.blackwomenshealthproject.org
Black Women's Health Imperative
Representative: Tammy Boyd
To improve the health and wellness of Black women and girls - physically, emotionally and financially.
https://www.bwhi.org/
LymeDisease.org
Representative: Lorraine Johnson
Educate the public and medical community, disseminate information, and fund research regarding Lyme and other tick-borne diseases.
www.lymedisease.org
Mothers Against Medical Error
Representative: Helen Haskell
Promote an ethical, patient-centered healthcare system that is based on sound medical evidence and transparent patient outcomes.
www.advocatedirectory.org
National Committee to Preserve Social Security and Medicare
Representative: Bill Vaughan (co-chair)
Protect, preserve, promote, and ensure the financial security, health, and the well being of current and future generations of maturing Americans.
www.ncpssm.org
CUE Member Organizations
California Breast Cancer Organizations (CABCO)
Representative: Sandy Walsh
California Breast Cancer Organizations is a coalition of nine member organizations, which work together to achieve CABCO’s mission: the eradication of breast cancer through education and advocacy.
Celiac Disease Foundation
Representative: Marilyn G. Geller, CEO
To improve the quality of life for all people affected with celiac disease and non-celiac wheat sensitivity through important advocacy, education and research initiatives.
www.celiac.org
Center for Medical Consumers (inactive)
Representative: Maryann Napoli
Broaden public awareness about the safety and quality problems in medical care.
Center for Science in the Public Interest
Representative: Caitlin Dow
Promote nutrition and health, food safety, alcohol policy, and sound science.
Centering Healthcare Institute
Representative: Alia Rawji
Improve maternal child health by transforming care with Centering groups.
Cherab Foundation
Representative: Lisa Geng
Improve the communication skills and education of all children with speech and language delays and disorders.
Childbirth Connection Programs of the Partnership for Women and Families
Representative: Carol Sakala
Improve the quality of maternity care through research, education, advocacy and policy.
Children With Diabetes Research Foundation
Representative: Sonia Chritton
The mission of the Children With Diabetes Foundation is to fund human clinical trials leading to cure and prevention of Type 1 diabetes.
Citizens for Patient Safety
Representative: Patty Skolnik
Build bridges between consumers, the medical community and insurance companies to improve healthcare systems and the quality of care that patients receive.
www.citizensforpatientsafety.org
Connecticut Center for Patient Safety
Representative: Lisa Freeman
To improve the quality of healthcare and to protect the rights of injured patients through education, accountability, and advocacy.
Consumer Reports
Representative: Doris Peter
Work for a fair, just, and safe marketplace for all consumers and empower consumers to protect themselves (focus on health).
www.consumersunion.org
Faces and Voices of Recovery
Representative: Patty McCarthy Metcalf
Mobilize people in long-term recovery from alcohol and other drug addiction to increase access to research, policy, organizing and technical support.
www.facesandvoicesofrecovery.org
Families USA
Representative: TBD
Advocate for national health reform that would expand coverage to everyone without insurance, provide stable coverage to those with insurance, and improve quality while decreasing costs for consumers and the healthcare system.
Hepatitis B Initiative of Washington D.C.
Representative: Jane Pan
To mobilize communities to prevent liver diseases caused by viral hepatitis among Asian Americans and Pacific Islanders, African immigrants, and other high-risk groups.
Homebirth Summit Consumer Engagement Task Force
Representative: Lynsey Hamilton
Improve maternity care and develop high-quality home birth services by increasing consumer participation in multi-stakeholder initiatives.
www.homebirthsummit.org/actiongroups/consumer-engagement
Lamaze International
Representative: Laura Ruth Ward
Promote a natural, healthy and safe approach to pregnancy, childbirth and early parenting.
Maine Coalition to Fight Prostate Cancer
Representative: Terry Kungel
Raise awareness of prostate cancer and the importance of early detection by working with many groups in Maine and around the country to achieve the common goal of eradicating prostate cancer.
www.mcfpc.org
MedShadow Foundation
Representative: Suzanne Robotti, President
To prompt discussion between patients and healthcare providers.
www.medshadow.org
National Alliance for Caregiving
Representative: Gail Hunt
Be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients.
National Breast Cancer Coalition
Representative: Annette Bar-Cohen
Eradicate breast cancer by participating in legislative, scientific and regulatory decisions, promoting positive media coverage and raising public awareness.
National Center for Health Research
Representative: Jack Mitchell
Promote the health and safety of women, children and families by using objective, research-based information to encourage new, more effective programs and policies.
National Center for Transgender Equality
Representative: Harper Jean Tobin
Advance the equality of transgender people through advocacy, collaboration and empowerment (focus on women’s reproductive health).
National Consumers League
Representative: Karin Bolte
Promote social and economic justice for consumers and workers in the United States and abroad (focus on health).
National Council on Aging
Representative: Wendy Zenker
Improve the lives of all older adults especially those who are vulnerable and disadvantaged (focus on health).
National Environmental Education Foundation
Representative: Vernessa Perry
Provide knowledge to trusted professionals who, with their credibility, amplify messages to national audiences to solve everyday environmental problems (focus on environmental health).
National Mental Health Consumers’ Self-Help Clearinghouse
Representative: Susan Rogers
Promote dignity, respect, and opportunity for those with mental illnesses.
www.mhselfhelp.org
National Partnership for Women & Families
Promote fairness in the workplace, reproductive health and rights, access to quality, affordable health care, and policies that help women and men meet the dual demands of work and family.
http://www.nationalpartnership.org/
National Women’s Health Network
Representative: Sarah Christopherson
Improve the health of all women by developing and promoting a critical analysis of health issues in order to affect policy and support consumer decision-making (focus on women’s reproductive health).
Nueva Vida
Representative: Astrid Jimenez
Inform, support and empower Latino families whose lives are affected by cancer, and to advocate for and facilitate the timely access to state of the art cancer care, including screening, diagnosis, treatment and high-quality care.
www.nueva-vida.org
Our Bodies Ourselves
Provide clear, truthful information about health, sexuality and reproduction from a feminist and consumer
perspective.
Ovarian Cancer Alliance of San Diego
Representative: Peg Ford
To effect change in the way medical doctors consider diagnosis and treatment of ovarian cancer by educating the medical community, patient organizations and the community at large to accomplish early diagnosis, improved treatment options, and eradicate ovarian cancer.
Patient Safety America
Representative: John James
Support a national, enforced patient bill of rights and to provide information to patients or potential patients who are concerned about the quality of health care they receive in the United States.
Philadelphia Ujima
Representative: Lidyvez Sawyer
To build and maintain our community, while working with others to solve our problems.
www.philadelphiaujima.com
Rhode Island Breast Cancer Coalition
Representative: TBA
Ensure that all women have access to screening and treatment for breast cancer, to increased support for research, and advocate for legislative initiatives to improve the quality of healthcare for women and their families.
www.breastcancerri.org
SCAD Alliance
Representative: Katherine Leon
To be the leader in advancing the science of SCAD through improved knowledge and cooperation among healthcare professionals, patients, and their families.
www.scadalliance.org
TMJ Association
Representative: Terrie Cowley
To improve the quality of healthcare and lives of everyone affected by temporomandibular joint and muscle disorders by promoting advocacy and research and providing resources.
www.tmj.org
VHL Alliance
Representative: Ilene Sussman
To improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
Washington Advocates for Patient Safety
Representative: Yanling Yu
To advocate for patients' rights and safety.
www.washingtonadvocatesforpatientsafety.org
Young Survival Coalition
Representative: Michelle Esser
Increase the quality and quantity of life for women diagnosed with breast cancer ages 40 and under.