2017 CUE Summit

Consumer Advocacy Summit: Leveraging the Power of Patient & Consumer Advocacy to Transform Healthcare 

March 19, 2017

7:30am - 5:00pm

New York Academy Of Medicine


7:30-8:30 am: Registration and Continental Breakfast

8:30-8:45 am: Welcoming Remarks: What do you want to learn today?  Ngina Lythcott and Lorraine Johnson, CUE Co-chairs

8:45-9:00 am: Keynote I: The politics of consumer advocacy: The promise and pitfalls of disease constituencies Vinay Prasad, Assistant Professor of Medicine at the Oregon Health and Sciences University

9:00-9:30 am: Discussion

9:30-9:45 am: Panel I: Have we made a difference? Progress in patient/consumer engagement in healthcare decision-making        

  • Yes, patients/consumers have made a difference Sandra Zelman Lewis, Chief Guidelines Officer, Doctor Evidence; President, EBQ Consulting; Immediate Past Chair, G-I-N North America
  •  I have no idea whether public representatives like me have made much of a difference Maryann Napoli, Retired Associate Director, Center for Medical Consumers
  • Maybe, patients/consumers have made a difference Bill Vaughan, Consumer Advocate

9:45-10:15 am: Discussion

10:15-10:45 am: Break - "Networking Bingo"

10:45-11:00 am: Sneak peak at CUE's "Mock Advisory Panel" video

11:00-11:15 am: Discussion

11:15-11:30 am: Keynote II: How PCORI "priority populations" are engaging in research implementation Sanford Jeames, Adjunct Professor at Huston-Tillotson University

11:30-12:00 am: Discussion

12:00-1:00 pm: Networking lunch

1:00-1:45 pm: Panel II: Let's start over: How to achieve patient engagement in research implementation

  • Thinking out of the box: What does success look like? Gregg Gonsalves, Research Scholar in Law, Yale Law School
  • What does patient engagement look like to marginalized communities? Laura Logie, Director of Research, Nueva Vida
  • Do increased partnerships among stakeholders lead to speedier implementation of patient-centered outcomes research (PCOR)? Jean Slutsky, Chief Engagement and Dissemination Officer, PCORI

1:45-2:15 pm: Discussion

2:15-2:45 pm: Break - extra "Networking Bingo" time

2:45-3:15 pm: Keynote III: If it works in the UK will it work in the US? Sally Crowe, Crowe Associates Ltd, Cochrane Consumer Network

3:15-3:20 pm: Discussant Marguerite Koster, Senior Manager, Evidence-Based Medicine Services, at Kaiser Permanente

3:20-3:50 pm: Discussion

3:50-4:05 pm: Keynote IV: Consumer engagement: goals for the next decade Susan Love, Dr. Susan Love Research Foundation

4:05-4:35 pm: Discussion

4:35-4:45 pm: "Networking Bingo" prize

4:45-5:00 pm: Evaluation and closing remarks